Title : New York Organ Donor Network
link : New York Organ Donor Network
New York Organ Donor Network
♪♪ >> i want to introduce to you zion harveyand his mom pattie ray. [applause] tell me what you told me last night at the playground about writing a letter.
New York Organ Donor Network, because that was very special to me.what did you want to do? >> i just wanted to write a letter to theparents of ... for giving me their son's hands because they didn't have to do that if theydidn't want to. >> you're right, that's very special.
you know that? and the fact that you wanna talk to otherkids who might have this, is really special to me, that's really, really pretty amazing. and you know what? you're gonna help a lot of people. that's what we hope. we wanted to help you first but you're gonnahelp a lot of people. did you know that? and i don't mean the baltimore ravens.
>> don't worry. >> i think from an emotional standpoint, heremains a remarkable young man because here, we've had weeks of hospitalization, a dailyrequest for him to interact, to do therapy, to undergo testing, to interface, and again,there's never been one iota of resistance where i don't want to today, or i don't feellike, or things that we might hear from an adult, let alone a child. try to open that thumb up. good squeeze, good squeeze >> i can't remember any child of his age who'sbeen this mature; always with a great disposition.
don't be getting too comfortable; you're like about to sleep ok, i won't sleep. >> i would say pre-operatively, he was verymotivated and excited about the transplant, but post-operatively, we were incredibly impressedby zion's positive attitude and his continued motivation to go through therapy. and i think we can see how proud he is ofwhere he is at today. >> music time is over so it’s time to sing goodbye, goodbye … you know this. >> goodbye, goodbye, goodbye everybody,goodbye let me sit down here with you.
can i take a look at you? i wanna sort of look at his function now,so let's take these off buddy. to see him, you know, start to hold objects,scratch his nose, shake hands goodbye, his function's far from normal, but in a very short time he's demonstratingthat the tendons and the joints and the muscles that we've attached to these new hands, hisbrain is communicating with his hands. his brain says for his hands to move and they move. and that in and of itself is remarkable becausefor six years of his life, that part of his brain, if you will, was asleep.
there were no hands to activate. there was no feedback in any way, shape orform, visually or from his joints that he had a hand. now, let me see that thumb wiggle again. whoa, that is the best yet. >> it's not weird to see him with the hands,it's just, it's just like an old feeling coming back. you know. like if you've ever loved someone some typeof way and then, you see him like, oh, it's
rushing back all again. there it is, that's how i feel about his hands. it's like an old feeling cause it's not weirdcause i've seen him with hands, you know. so it's just like, all that little gooey stuffyou feel for your baby, rushing right back in. i just wanna hold his hands and touch himand kiss him and love on him. that's what it feels like. >> today is a celebration of what we do atchop, but most importantly it's a celebration about our buddy zion, ok. so, we wanna have a little pizza party forhim and have you see the end result of what
we started here. >> all i want to say is the next child thatcomes along, i know you will do the same as you done for me; and every child that comesalong after the next, you will make them feel a part of a world again. eight months later >> i would say if we did hand transplantsand he couldn't do anything other than look at his hands and they were pretty looking hands,but they didn't function, we would abjectly fail him. but it's quite the opposite.
he's writing, he can feed himself, he's learninghow to button. i saw him zip up his zipper today. so he's gaining independence, which is theentire reason why we do this. >> zion's hands do grow with him, and we makesure that when we do the surgery, the growth plates stay open so that his hands will growwith him. it's only been eight months but we can seethat the size is proportional. >> more than eight months since we did thetransplant, he's made tremendous progress. i mean, it took over a month before he could leavethe hospital and go to rehab. now he's transitioned to home with his family.
when we initially did the hand transplant,we used some of the skin from the donor and some from zion, but we saved a lot of extraskin between the two of them so that we could accommodate for swelling after the surgery. and so once the swelling has gone down asit has, there's some extra skin, and we do plan to go back at a later date, usually atleast a year out from surgery, to take out some of the extra skin and improve the contour. physically, all the things that we repairedhave healed, so he's really in fulltime rehab mode right now. i think just how incredibly well he's donewith getting through the ups and downs of
the recovery and the rejection episodes andsome illnesses that he's had over the winter just like any other kid. but he and his family have managed it so well,you know, beyond our expectations. >> we have a very, very specialand intricate bond. from sleeping in hospital cribs together; you know, not many people can relate to that,you know, always waking up and their mom being there, you know, and never leaving. so you know, i respect the bond and i know,you know, if he does ... if he is clingy at times, cause he can be.
sometimes he doesn't want me to go. >> i owe everything to my mom because shehelped me when i was through the roughest times of my life. my mom said, you have to learn to do it byyourself before you ask somebody to do it for you. she's the best mom i ever had. >> you know, he's become this independentperson that doesn't need me around all the time. he takes his meds on his own now. get it like, what am i here for now?
that's how i feel, like, oh my goodness, ishe not gonna need me next year? it's very bittersweet. i'm happy for him. >> i did most of my art in here;did most of my rapping in here. here's a new song i'm working on. over here, we have jackie robinson, over here,we have muhammad ali, and up here, we have ray lewis. and in the middle of all them, is me. the one thing that's different is, insteadof having no hands, i have two hands,
and everything else is the same. my friends haven't changed, they haven't treatedme any different. i'm still a kid; i'm still the same kid everybodyknew without hands. >> happy birthday, zion >> thank you, thank you now i can get myself dressed without anybody helping me. now, i can get a snack out the refrigeratorwithout anybody helping me. i can heat up a sandwich and a piece of pizza all by myself. so it feels like i'm there already.
i am always independent and always will be. so, when you see more of zion harvey in thefuture, always remember he was always an independent boy. >> how old are you, zion, how old are you now? >> i am 9 years old. i'm looking at my wheelchair right now andi'm ... i'm remembering that when i needed it, it was always there, but now, i got oneleft hand and one right hand, they can always help me when i fall down. i'll get back up.
there's one thing, if any kid is watchingthis, and you're going through a rough time, never give up on what you're doing. you'll get there eventually.
At the end this articel New York Organ Donor Network
Now you have reading New York Organ Donor Network with link addresshttps://networkrealtionforbussiness.blogspot.com/2017/05/new-york-organ-donor-network.html
0 Response to "New York Organ Donor Network"
Posting Komentar